Lets Get Chase to New York 2012 - the beginning

This Journey was launched as a direct response to NZ's medication authority Pharmac imposing costs on Chase’s over night feeds and supplement feeding.

Chase at nearly 10 years weighs a paltry 22kgs.  Average weight for 10 yr old boys is 32kgs. The battle to gain weight is constant and sometimes down right exhausting for all of us, but we do it so we can have Chase for ever!!

Chase puts up with overnight feeding through a tube into his stomach. He doesn’t sleep so well and often tangles himself up in the tubing. We don’t sleep so well as we have to wake him every 2 hours to give him enzymes.

That’s 3 cans a night 7 nights a week. Now at $2.12 per can that’s $44 a week… and that doesn’t include the milk supplement Chase drinks during the day.

So the $50 a week we were saving for Chase’s trip just got canned.

And you know us Mums; we can be galvanized into action very quickly when someone starts messing with our kids!

·         1^st action – start lobbying the powers that be and email MP’s and Pharmac stating the facts!

·         2^nd action – find another way to fund the trip in case our lobbying didn’t work – hence the launch of “Let’s get Chase to New York 2012”

As parents, Steve & I will be funding most of Chase’s trip via pocket money and our own savings. In fact we’re considering selling the house and moving to put some funds aside if required.

But for today we are looking for help from not just friends and family, but from others who want to help one young man acheive his dream before it gets too hard for him to enjoy. Chase's job is to get well. He currently has Pneumonia and is off to hospital to spend his school hols trying to get well before next term comes around. But he's hanging onto his dream and focussed on the big goal!

So we welcome you to join us on this journey of inspiration, magic and hope.

Chase's mum, Donna